In this video, Janeana discusses the
challenges and
successes she has experienced during her
treatment for essential thrombocythemia (
ET). She explains that early on, navigating her symptoms and the healthcare system was difficult, especially with
debilitating fatigue and providers who weren't always familiar with ET. Successes came through connecting with an
empathetic care team, using tools like the
fatigue scoring tool, and
engaging with the MPN community, which helped her feel supported and less alone.
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