Dana's story: How did you find out you had polycythemia vera (PV)? — Patient Video

Dana shares how she learned she had polycythemia vera (PV). During a routine primary care visit in 2019, bloodwork revealed very high platelet counts, prompting repeat testing and a referral to a hematologist. She was initially diagnosed with essential thrombocythemia, but further evaluation, including genetic testing and a bone marrow biopsy, showed rising hemoglobin and hematocrit levels, leading to a PV diagnosis. Looking back, Dana recognized long-standing symptoms and abnormal labs dating back to childhood.

  • Share with family and friends:

Click here to take our SURVEY
Your feedback is important to us! We will use your feedback to develop future areas of content about myeloproliferative neoplasms which will help other patients, caregivers, and families.

Other Modules: